If you have been advised during pregnancy that your baby might have a DSD than it is too early still to map your baby’s development and understand what this will mean. Once your baby is born there will be lots of useful information for you on this site.

In the mean time, you need to be referred to a specialist endocrinologist, i.e. a hormone doctor with expertise in DSD, who will support you in the run up to the birth. If they agree that baby might have a DSD, do have a look at the ‘Early Days – When your baby is born with genitals that look different’ brochure. 

You might also find the following information, written for us by a parent, useful: