We have secured funding from BBC Children in Need and Big Lottery to consult with young people living with a DSD, CAH or hypospadias, their parents/carers and health care providers. We are also interested to hear from adults born with a DSD about their experiences growing up. Additionally, we are running Family Days for families and children to meet and to share experiences and talk about needs. We will use all this information to develop national programmes and resources.
If you want to be involved and have a say, please fill in the relevant survey:
- I am a young person (under the age of 18): http://bit.ly/survey-YP
- I am a parent or carer of a child with a DSD: http://bit.ly/survey-parents
- I am an adult (over the age of 18) born with a DSD Adults http://bit.ly/survey-adult
- I am a healthcare provider http://bit.ly/survey-hcp