We have secured funding from BBC Children in Need and Big Lottery to consult with young people living with a DSD, CAH or hypospadias, their parents/carers and health care providers. We are also interested to hear from adults born with a DSD about their experiences growing up. Additionally, we are running Family Days for families and children to meet and to share experiences and talk about needs. We will use all this information to develop national programmes and resources.

If you want to be involved and have a say, please fill in the relevant survey:

If you would like to know more about the Family Days, visit the family days page, or contact us on: info@dsdfamilies.org