Anyone can map their own sex development using The Story of Sex Development.  This resource breaks down sex development in small steps. A young person learning about his or her body, or the parents of a little baby with genitals that look different can easily trace development from tiny embryo to birth. Doctors and healthcare professionals can use this booklet too.

First days DSD booklet is available in multiple languages (click on the filename to download): Arabic, Bulgarian, Dutch, Catalan, German, Norwegian, Polish, Russian, Spanish, Swedish, Turkish, Urdu.

Top Tips for dilation

Top Tips for Talking with children about Differences of Sex Development.

Read our 2019 consultation report here.


Other selected resources, interviews, guest posts and blogs by dsdfamilies


External resources

  • CAH - supporting people with CAH, their families and friends.
  • I have CAH - by Emma - 10 years old
  • Klinefelter's Syndrome - offers support and information to all affected by, or having an interest in, Klinefelter’s Syndrome (KS) and XXY.
  • Turner Syndrome Support Society - provides accurate and up-to-date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. 
  • FAQ from families by HEA - parents of children with peno-scrotal hypospadias might find the information and tips on the HEA website helpful. HEA is the American Hypospadias and Epispadias Organisation.  (This is very useful for parents of boys born with severe hypospadias.)
  • The American support group AIS/DSD - supports all children, whatever their DSD diagnosis.  Here you find some more information about educating and sharing information with children